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    • This website is for UK Healthcare Professionals only

      Resources

      In this series of Parkinson’s Perspectives videos, experts in Parkinson’s disease share insights from key scientific sessions at the 2020 Movement Disorders Society (MDS) Virtual Congress. The experts discuss the main take-home messages from the MDS session and share their personal opinions about how these may impact, or be applicable to, clinical practice in the UK.

      The views and opinions expressed by the speakers in these videos are their own and are not necessarily reflective of those of AbbVie.

      Insights from the MDS session ‘Digital Health Technologies in Movement Disorders’, where speakers discussed the following topics:

      • Walter Maetzler: Digital Health Technologies: The Toolbox in 2020
      • Bastiaan Bloem: Digital Technologies for Diagnosis and Disease Monitoring
      • Alberto Espay: Digital Health Pathway for Personalized and Integrated Care 

       

      Insights from the MDS session ‘Innovative Models in the Integrated Management of Parkinson’s Disease’, where speakers discussed the following topics:

      • Jennifer Goldman: Interdisciplinary Team Models of Care in Parkinson’s Disease
      • Mark Guttman: An Integrated Telemedicine Approach in Parkinson’s Disease
      • Maya Katz: Integrated Palliative Care in Parkinson’s Disease: Timing Matters

       

      Insights from the MDS session ‘COVID-19 and Movement Disorders’, where speakers discussed the following topics:

      • Elena Moro: Neurological Manifestations in patients with COVID-19
      • Alfonso Fasano: COVID-19 in Patients with Parkinson’s Disease or Movement Disorders
      • Esther Cubo: Caring of Patients with Movement Disorders in the COVID-19 Era

      Insights from the MDS sessions ‘Updates on Medical Management Strategies for Parkinson’s Disease: Motor Aspects’ and ‘Parkinson’s Disease: Non-motor Aspects’, where speakers discussed the following topics:

      Updates on Medical Management Strategies for Parkinson’s Disease: Motor Aspects

      • Oscar Gershanik: Early Pharmacologic Management
      • Alice Nieuwboer: Rehabilitation Strategies
      • Regina Katzenschlager: Medical Management Strategies for Advancing Disease Patients

      Parkinson’s Disease: Non-motor Aspects

      • Anette Schrag: Neuropsychiatric Features
      • Horacio Kaufmann: Dysautonomia
      • Ron Postuma:  Sleep and Fatigue

      This three-part webinar series brings together Parkinson’s experts from across the UK to share best practice on the following topics:

      •  Access to services for complex Parkinson’s patients
      • Patient selection for device-aided Parkinson’s therapies
      • Practical Duodopa pathways

      Dr Francesca Morgante (St George’s Hospital NHS Foundation Trust, London) and Dr Alfonso Fasano (University of Toronto) act as Co-chairs throughout the series, providing their expert insight into the topics discussed and facilitating the interactive panel discussions at the end of each webinar. 

      In the first webinar in the series, Professor K Ray Chaudhuri discusses the importance of identifying and referring complex Parkinson’s patients who may be eligible for device-aided therapies. He highlights the importance of choosing the right treatment for each patient. He also covers the possible implications of the COVID-19 pandemic on Parkinson’s services in the future.

      Professor K Ray Chaudhuri, Professor of Neurology/Movement Disorders and Consultant Neurologist, King’s College Hospital and King’s College London, 2020.

      In the second webinar in the series, Dr Konrad Szewczyk-Krolikowski talks about the selection criteria for non-oral Parkinson’s therapies. Lucy Mooney then discusses the real-world practicalities of selecting patients for non-oral therapies, including the assessment process and tools used in Bristol, and highlights the importance of shared decision-making with the patient.

      Lucy Mooney, Lead Movement Disorder Nurse Specialist, North Bristol NHS Trust, 2020.

      Dr Konrad Szewcyk-Krolikowski, Consultant Neurologist with interest in movement disorders, North Bristol NHS Trust, 2020.

      In the third webinar in the series, Alison Leake discusses the Duodopa pathway at St George’s University Hospital, London, focusing on practical considerations and how real-world experience has evolved the pathway over the years. Miriam Parry and Dr Patrick Dubois then describe the patient journey at King’s College Hospital, London. They highlight the importance of interdepartmental collaboration and communication for setting up a successful Duodopa service, noting the significance of the relationship between the neurology and gastroenterology teams.

      Dr Patrick Dubois, Consultant Gastroenterologist, King’s College Hospital NHS Trust, London, 2020.

      Alison Leake, Movement Disorders CNS, St George’s University Hospitals NHS Foundation Trust, London, 2020.

      Miriam Parry, Senior Parkinson’s Disease Nurse Specialist, King’s College Hospital NHS Trust, London, 2020.

      These patient testimonials provide an insight into how burdensome advanced Parkinson's can become, and show individual patient experiences on DUODOPA.

      Patient video: Ian's story 

      Patient video: Richard's story

      Patient video: Steve's story

      Downloadable Resources

      Identifying patients suitable for device-aided therapies: Learnings from clinical experience

      This guide, for UK healthcare professionals, discusses the considerations for selecting an appropriate device-aided therapy (DAT) for people with complex/advanced Parkinson’s disease. The considerations featured in this guide are centred on studies of expert opinion based on clinical practice and collective physician perspectives of non-oral medication approaches. Please note, this material does not replace guidelines or locally agreed processes and procedures.

      Virtual Consultations: A quick reference guide

      A quick reference guide on optimising virtual consultations, which contains top tips to support remote management of people with Parkinson’s. The guide includes guidance for before, during and after the consultations, as well as tips to maximise a Parkinson’s specific consultation so you can deliver valuable care.  This guide was developed in collaboration with experts in the field:

      • Dr Jonathan Evans, Consultant Neurologist, Queen’s Medical Centre, Nottingham
      • Ms Miriam Parry, Senior Parkinson’s Disease Nurse Specialist, King’s College Hospital NHS Foundation Trust
      • Ms Katie Goates, Healthcare Relationships Manager, Parkinson’s UK

      Please note: this guide is not intended as a substitute for validated guidelines or locally agreed processes and procedures.

      Complex Parkinson's Assessment Tool

      The Complex Parkinson’s Assessment Tool has been developed for UK healthcare professionals by a working group of UK neurology specialists in collaboration with AbbVie to apply the findings from the Delphi consensus.2

      It can be used to identify Parkinson’s patients whose oral dopaminergic therapies may no longer be adequately controlling their symptoms. These patients may therefore benefit from referral to a specialist centre for non-oral therapies.

      The tool was developed in collaboration with Dr Konrad Szewczyk-Krolikowski, Dr Jonathan Evans, Dr Nirosen Vijiaratnam, Dr Vaclav Dostal, Lynne Osborne, Alison Leake, Miriam Parry, Patsy Cotton, Tracy McElwaine and Jane Alty.


      References

      1. Duodopa (levodopa/carbidopa intestinal gel) Summary of Product Characteristics. Available at: www.medicines.org.uk.
      2. Antonini A, et al. Curr Med Res Opin. 2018;34:2063–73.

       

       

      Adverse events should be reported. Reporting forms and information can be found at yellowcard.mhra.gov.uk.

      Adverse events should also be reported to AbbVie on GBPV@abbvie.com 

       

      UK-DUOD-210148 . Date of preparation: July 2021.